I am now at the hospital waiting.
It’s 18 months or so since was first diagnosed and I feel pretty at home with this whole process. I was saying to Maria that sometimes I missed the feeling of feeling really, really well. But the truth is at 58 I think one is fairly lucky not to feel really, really ill. Everyone I know has aches and pains, allergies, viruses, worries, addictions or whatnot.
I often do my blogging while waiting here. It’s more absorbing than reading and can be interrupted with no great loss to continuity. The vibe in here is nearly always positive. A few of the newbies are clearly nervous and those unlucky enough to have bad reactions to chemo are not exactly chipper but most of us are pretty jolly. It can’t be that we are all on uppers although maybe we are. I still cannot understand anyone who does not make full use of all the wonderful drugs you are offered. From pain, through sickness, anxiety, depression, low energy, hyperness, every remedy is on offer and all for free. So much better to be a drug addict than in pain, sad or unchipper.
Wei, a nurse, has had a really great experience with one of those therapies where you get rocks put on you but you are not touched. Energies or something. As she, along with all the other nurses, were extremely sceptical, and she is a very sensible, intelligent person I must admit I am tempted to have a go. Apparently the cancer care extra services need to be supported otherwise they get cut – so I just might do something that I firmly believe to be utter baloney – mainly because I like and respect Wei but also I don’t want to see the daft, spiritual la di da cut, just because I (and apparently all the doctors who were dragged to the demonstration) am a sour cynic.
As I was saying I am not a big reader unlike everyone else in my family. A standing joke in the family is that the only novel I ever read was ‘Bom the Little Drummer’ by Enid Blyton. Since being ill I have read a lot more but still see it as a bit of a chore compared to TV, sleeping or gluing…
Two days later – oops forgot to finish this blog. Interrupted by treatment.
Had a fine old time at hospital. My haemoglobin levels are deteriorating very slowly so hopefully it will be a long time before I need another dose of poison. As another dose is inevitable I take this as great news. Fingers crossed on that, as it’s entirely unpredictable. And can suddenly accelerate. I asked my consultant if there was anything I can do to to help, to which he answered emphatically no. I really like this answer. So much better than all that bullshit about a positive attitude or take milk of a pregnant ass on a windless night facing east.
Nurse Richard looked after me this time. He is so nice. He is being promoted to a Haematology specialist nurse with a special interest in myeloma so I am delighted for him and for me. I told him he should find a cure and fast. So he’s going to do that. He also provided me some very simple advice I had had before but forgotten. Drink more water. Partly cos it fills your veins so makes the needle probing easier – it hurts a bit these days – and partly cos it flushes your kidneys which for myeloma is very important. So I tried this yesterday and do you know I felt amazing all day. Drank about 2 litres of liquid over the day including tea and coffee. Conclusion – It’s perfectly possible that my obsessive nature that causes me to forget to eat and drink when my head is down in a project, is not good for me. The only obvious side effect is pissing all night long but who cares about that. Today I have already had more energy than normal and feel great. So I have found something to believe in, at least for now. Drinking.
The phone box progressed at a phenomenal rate compared to some days and has just one last sensor issue to be resolved. As some of you may one day experience it ‘live’, so to speak I will give nothing more away, suffice to say I am now really just a day or two away from putting the physical/technical side of the box aside and moving onto the cerebral/technical. I know I have said that before but this time I think it’s going to happen. Btw the webcam issue was unresolveable – the camera I bought was just too cheap to do exactly what I wanted, so the only way to view the inside of the box online is to use the username and password I distributed (didn’t I?). No great loss. Red window bars and a rusty incinerator. The view from the outside seems to work fine. At night it’s fun to watch spidey spinning her web across the lens.
The hens no longer feature so strongly in my life partly because they are almost entirely cut off from us by a ‘verdant darkling’ undergrowth plague. (Observe as I rekindle my poetic chops) All other wildlife seems to be outside the house for now so that’s good, but I kind of miss ratty and his or her intrepidness. A spaniel with a pink sparkly collar popped into the house yesterday morning. I was delighted and he seemed set to stay. His owner seemed unperturbed indeed moments later a very overweight Labrador joined us. Bobby our tabby was more surprised than scared. Perhaps the pink sparkly collar and the near coronary flab took the edge of the threat.
Maria is doing the great tomato bottling ceremony for her mum. The smell is divine. She is making excellent progress as director of Dido and Aeneas. We came up with a very snappy poster for her concept. Whose clever enough to spot the musicological pun/reference? Clue: Maria has transposed the action to a modern day TV experience.
Bored writing now.